Co Down Man Shares HIV Journey to Combat Stigma on World AIDS Day

A man from Co Down has publicly shared his story about living with HIV for the first time, using the occasion of World AIDS Day to highlight the importance of awareness and testing. The individual, who prefers to remain anonymous, was diagnosed with HIV 11 years ago after a new partner concealed their status from him.

At the age of 61, Eddie, a business consultant and father of two, reflects on the profound impact that his diagnosis had on his life. He credits the charity Positive Life with helping him navigate a challenging journey filled with “shame and stigma,” which nearly drove him to take his own life.

Eddie’s health began to decline when he was 50, prompting his GP to request an HIV test. Upon receiving the diagnosis, he faced a harsh reality. “The GP said I was HIV positive. There was no discussion about what HIV was, just that I needed to go to the GUM clinic,” he recounted.

The stigma surrounding HIV in Northern Ireland is significant, and Eddie describes it as “the last taboo.” He confided in very few people about his condition: his ex-wife and children remain unaware, and he only shared the news with three close friends. The fear of judgment even led him to avoid healthcare services, including dental visits.

“Most people think it just affects gay men,” Eddie stated. “I was married with children. We need to get the message out that anyone of any age or gender who is sexually active can get HIV.”

He emphasized the importance of regular testing, treatment, and support. “The most important message right now is to get tested, to get treatment, and to access the non-judgmental support I’ve had from Positive Life as soon as possible. Then you can get on with living your life and protect others from getting HIV.”

Eddie reached out to Positive Life, Northern Ireland’s only dedicated HIV charity, earlier this year. “Had it not been for Positive Life, I wouldn’t be here to tell my story,” he explained. The organization provided him with therapeutic counseling and support that has been crucial in helping him accept his diagnosis.

Despite advancements in HIV treatment since the 1980s, Eddie believes that attitudes towards the virus in Northern Ireland have not progressed in a similar manner. Recent statistics from the Department of Health reveal that there were 101 new diagnoses of HIV in the region last year, with a total of 1,439 individuals currently living with the virus. Alarmingly, a survey indicated that almost a fifth of those aged 16-34 have not heard of HIV, and fewer than one in three are aware that effective medication can prevent transmission.

Jacquie Richardson, chief executive of Positive Life, echoed Eddie’s sentiments. “Our message is get tested, know your status and end HIV,” she stated, emphasizing the need for increased awareness and education surrounding the condition.

Through sharing his story, Eddie hopes to break the silence around HIV and encourage others to seek testing and support without fear or stigma.